Meet the Founders

Beatrix: The Heart of the Campaign

The Struggle: Diagnosed with heart failure at just 15 months old, Beatrix lived at the Freeman Hospital for over a year.
The Wait: She was kept alive by an artificial heart, hitting milestones like walking and talking on a hospital ward instead of at home.
The Gift: In 2023, she received her life-saving transplant.
Today: Now 5 years old, Beatrix is thriving in school. She loves Singing, dancing, her sister and mud – although sometimes she’s not sure in which order!

Charlie: The Voice for Change

The Struggle: Diagnosed with rare kidney disease at age 8, Charlie lost his childhood to a relentless cycle of dialysis and hospital stays.
The Toll: He endured over 7,500 hours of dialysis and missed more than 2,000 hours of school.
The Gift: After three years of waiting, his wish for a life away from machines came true in 2025 with a kidney transplant.
Today: A Points of Light and British Citizen Youth award recipient for his advocacy work, Charlie loves reading, cooking, music and swimming – he is finally back on his bike and playing tag rugby—living the “normal” life he could once only dream of.

“I love learning and I really love being alive. We can help other people to live by letting them have our organs when we don’t need them anymore. I have a very special heart because, somebody else’s mummy and daddy made a very brave decision and agreed that I could have it”

Beatrix – Founder

“It is difficult to understand why teaching organ donation in schools is viewed as problematic and therefore not made a compulsory part of the curriculum, particularly when compared with other challenging subjects already included. By making organ donation a mandatory part of the curriculum, the Department of Education would provide schools with the necessary mandate to have these essential conversations without hesitation.

Schools provide a safe space to discuss ethical views. Research suggests that children as young as ten can grasp these concepts before strong biases are formed. Furthermore, young people act as influencers within their families; by encouraging students to discuss their decisions at home, we increase the likelihood that adults will also consider registration. I believe that primary and secondary education will facilitate the community engagement necessary to increase organ donation registration rates”

Charlie – Founder