Meet the Founders

Beatrix: The Heart of the Campaign

The Struggle: Diagnosed with heart failure at just 15 months old, Beatrix lived at the Freeman Hospital for over a year.
The Wait: She was kept alive by an artificial heart, hitting milestones like walking and talking on a hospital ward instead of at home.
The Gift: In 2023, she received her life-saving transplant.
Today: Now 5 years old, Beatrix is thriving in school. She loves Singing, dancing, her sister and mud – although sometimes she’s not sure in which order!

Charlie: The Voice for Change

The Struggle: Diagnosed with rare kidney disease at age 8, Charlie lost his childhood to a relentless cycle of dialysis and hospital stays.
The Toll: He endured over 7,500 hours of dialysis and missed more than 2,000 hours of school.
The Gift: After three years of waiting, his wish for a life away from machines came true in 2025 with a kidney transplant.
Today: A Points of Light and British Citizen Youth award recipient for his advocacy work, Charlie loves reading, cooking, music and swimming – he is finally back on his bike and playing tag rugby—living the “normal” life he could once only dream of.

“I love learning and I really love being alive. We can help other people to live by letting them have our organs when we don’t need them anymore. I have a very special heart because, somebody else’s mummy and daddy made a very brave decision and agreed that I could have it”

Beatrix – Founder

“Embedding organ donation as a compulsory part of the national curriculum — taught sensitively, age‑appropriately, and factually — would empower young people with the knowledge they need to make informed independent choices and to talk openly with their families. This is not a political issue; it is a human one. A simple, low‑cost addition to the curriculum could transform understanding, dispel myths, and normalise discussions that too often happen too late. Young people already learn about sexual health, mental health, and other life‑saving topics. Organ donation deserves the same attention; it should not be an optional extra.

The statutory guidance on Relationships, Sex and Health Education (RSHE), revised in July 2025 and coming into force in September 2026, states that secondary pupils “should” know the science of donation. However, the word “should” lacks the weight of a mandatory requirement. During my time as a secondary school student, I found that organ donation was only touched upon within the GCSE Biology curriculum. There are no discussions regarding the moral or ethical dimensions, nor is there signposting to further information. Teaching the science alone is not enough”

Charlie – Founder